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Designing a Life Worth Living

parenting

From helicopter to drone

lifestyleGabby Jacobsen
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It’s not always easy

… especially not with the criticism

Recently, I saw a Facebook post imparting college wisdom for parents. It basically read that a college student who struggles and receives a C grade will do much better in life than a student who receives support and receives a B or an A even. To this person (or persons who shared it) I submit they do not have a child with a disability.

My beautiful daughter is entering her 2nd year at a state university in a few weeks. Her dad and I are so incredibly proud of the fervor she has put into her studies. The right answers do not come easy to everyone, and certainly not when you’re swimming against the current, so to speak. Sure, many students succeed in spite of their disability, but I argue it may have been done at the risk of missteps in other areas of their college experience, or with the aid of some parental help.

When my children were small, despite the fact they had learning and physical disabilities, it was just as vital that they enjoy a healthy social life and feed their souls. There just isn’t enough hours in the day to accomplish the amount of extra study time necessary to “succeed on your own” and form the lasting, healthy relationships that are so important to lead a fulfilled life.

Most universities offer a disability department with counselors who assist with educational and independent living accommodations. As it turned out, one such counselor is the daughter of a great childhood friend of mine. She was instrumental in alleviating my kiddo’s first year stress. They had a standing appointment weekly to review classes, homework, testing, health and friendships. However, this relationship was akin to a big sister or mentor, who couldn’t really hold my kid accountable for her mistakes or correct poor choices. Namely, keeping an active to-do list or calendar. While we appreciated the way I could take several steps back, there were still phone calls and visits necessary to keep the kid organized and focused.

As much as other parents would like to call me a “helicopter mom” or even “overbearing” I submit that my daughter and I have a great relationship and nobody knows her better than me. When she was entering jr. high, she and I talked about how her Autism Spectrum disorder affected her life. One area she struggled with was reading people’s emotions and signals. She turned to me as the 1 person in her life who could help her navigate these questions, someone who understood her limitations and would always tell her the truth. It’s always been that way for us … and this has transferred over into making good decisions. For example, I know that making the choice of spending an evening with friends when she has 3 essays due in 2 days without proper preparation isn’t going to go over well. It easily takes her 2x as long to pump out an essay, she likely has a full day of classes, leaving her only 4-5 hours the following evening to complete them, and my kid doesn’t operate well when you add stress to the mix. Suggesting a compromise to drive herself, limit the time to an hour or two, and get some work done that evening is a better option, and one she customarily agrees with. It’s all about balance and planning.

A friend has a college kiddo with physical limitations. She has my undying admiration in the way she and her husband don’t “solve” the problems for their child, but rather work with her to allow her to spend her energy on what matters, her education. My friend’s husband spent much time commuting to a job in order to support my friend working from home or as a substitute teacher while she managed the accommodations for their daughter. In fact, my friend temporarily rented an apartment near the college campus to assist their daughter with getting dressed and shoes on for the day. Due to surgeries, the kiddo couldn’t bend over to put shoes on … yep … how’s that for needing help? She’s a really smart cookie, and I’m sure would love to NOT have her mom hanging around campus, but until something could be worked out, there she was, each morning, to help with the shoes.

But I digress.

While I contemplate what emotional and organizational support (if any) I will be giving my kiddo during her sophomore year of college, I have much to appreciate. She will succeed with or without me because we have raised a kind human. A hard worker who has found a field she loves. Someone who studios and producers will want to work with. But first, she has to make it through college, with all its ups and downs. 

So here’s to:

  • the high achievers

  • the hard workers

  • those who struggle despite their hard work

  • helicopter parents who are actually needed

  • the disability counselors who help parents let go a little

  • to universities and colleges for making room

  • to the friends who are friends even when the kiddo requires balance

  • to my little VW golfwagen “Pearl” who traveled many miles to give my kid a hug when she needed it and my cell provider for the hundreds of calls to keep my kid happy and on track

  • and to the parents who think they’re alone in praying for a lifetime of success for their disabled child despite criticism from others who just don’t know.

Thanks for listening. I recognize my rant was in defense (again) from those people who think they’re always right. My life and my parenting isn’t something anyone else can comment on unless they’re in my shoes or my kids are living on the streets. My girls are awesome young ladies and my husband and I are doing a bang-up job (or so I’ve been told).

As my friend Mary likes to say “You’re raising some good people, the kind that others want to be around.” Now that’s saying something …

It is really "helicoptering"?

lifestyleGabby Jacobsen

For those of you who don't know, both of my daughters have a learning disability. While I don't normally provide details about their medical histories, these disabilities have played a huge part of our lives. They have determined housing, vacations, jobs, schools, finances and friendships. They have also forever changed my husband and I, for the better.

I have been accused for years of being a "helicopter parent", which by definition means "a parent who takes an overprotective or excessive interest in the life of their child, especially in educational setting." School psychologists, counselors and friends have questioned my parenting. Funny enough, none of those same people are parents of disabled children. Especially special needs children trying to fight their way through a private school education system.

This came up again this weekend as my husband and I were taking our youngest to tour her university where she will be an incoming freshman this fall. A friend commented to my daughter how she was not making her own decisions on her adult path. She was upset by this because upon deeper reflection, every choice she'd made about her college education and life after high school has been solely her decision. Perhaps this friend was not aware that since she was in junior high, she had sought out our advice on a variety of issues. Dating, friendships, work, education, etc because her disability restricts her from seeing the bigger picture. Many of our discussions have been in asking her questions which may or may not lead her to making wise decisions. We do not "feed" her the answers, but rather help her make informed decisions. How does this make me a bad parent?

Growing up, I was never punished. I'd never been put on restrictions, provided extra chores, had possessions taken away or yelled at. My parents understood the power of disappointment and how to use that power to help your child make better decisions the next time. I suppose this is how I've raised mine. My girls are good kids. They would rather face the disappointment of their friends than my husband and I. I'm not saying ours is the best way, it's just what we know and what works for us.

If you've ever raised a child with disabilities, physical or educational, you'll understand how unless you demand a service you won't receive it. If you don't advocate, they won't listen. If you don't teach your child to advocate for themselves, they won't learn. But many children learn from example. A prime example is my older child who could manipulate even the most seasoned teacher. It didn't matter how many times I told the school psychologist that she knew how to multiply by 0's and 1's. She still spent 6 months with a private aide at school reviewing these. She'd finish her 40 homework problems alone in 5 minutes, and spend an entire math period at school on 20 questions. He accused us of doing the work for her. (In the end my mom called him an idiot and unfit to evaluate children.) Nobody knows your children better than you, and she might still be doing her lazy math if I hadn't pushed her math teachers to push back.

My husband and I are both in the trades. We did not expect nor demand our daughters attend college. It was left as an option, but if they wanted to work, attend a trade school, travel or marry, that choice was theirs. Both decided on additional schooling, and our youngest wanted to experience attending school at a university. She wanted to extend her youth and experience living on her own. Someday, she will take off and travel the world (her passion), experience new things and meet wonderful people. We are supporting her and letting her open her own doors.

I will continue to be available when my baby has questions or needs advice, just like any other parent would do when asked. She once told me "why would I ask my friends advice when they're at the same level as me? It seems smarter to ask people who've had life experience and who will give me guidance because they love me, not out of jealousy or deceit." She has matured so much this past few years and I commend her on every decision she's made. She still may say "my parents and I decided ______" but trust me when I say she's always in charge of her choices. And right or wrong, we'll always support them and be by her side during all of her ups and downs in life.

So I guess the moral of my blog today is "mind your own business!" My children and happy, well adjusted and strong. I'm teaching them to see all the options before making their decisions and loving them every step of the way. I'm following in mom's footsteps in choosing love over tough love until they give me reason not to. LOL